Wife, FIL, and I have spent weeks fighting the shutdown and medical facilities trying to find out WTF is going on with the MIL.
Give them hell Ian and don’t let them forget it is all about YOU.
So it's everywhere, huh? I said I wasn't gonna rant, but I have to a little. Add mass confusion, conflicting information, and the heat of the moment to an already impossibly cumbersome and incompetent medical system and...you know. Got a friend with stage 4 cancer missing two months of radiation that based on the first doses would have given her a lot better chance at the second half of her life, but they're too scared she'd get Covid. I'm like geeze, throw her in a Tyvek suit and a fireman's hood to get her in/out of the facilities and let her take her chances, she's 100% certainly going to die very soon anyway without treatment and is getting worse every day.
I got sent home with surgery schedule describing a "neck dissection; thyroidectomy" in two separate places. My thyroid is no part of this tumor and wasn't so much as mentioned in any of two appointments by the surgeon or his PA. I caught that reading as I was crossing the waiting room and turned on my heel to demand clarification that I got second-hand through the scheduling clerk that it was "precautionary" and "he might have to take it out". Ummm, negative. Not gonna happen. If he thinks so I'm going to find a different outfit that would at least discuss it with me first.
Same clerk went over the preop tests, in her own handwriting and highlighter, for labs, chest x-ray, and covid test. I gave them over $18,000 worth of high-resolution imaging tests on DVDs I handed the surgeon myself a month ago and they want a @*#$&% X-RAY??!! Ok, fine, I'll get one. Then I get home and read the whole thing myself and there's a little thing about an EKG. Nobody said a word about that and I asked the surgeon several times how's this work, what do I need to do, what do I expect before/after, and basically got zero effective explanation other than we kinda think it might be a nerve sheath tumor and you'll probably lose some function like voice, left arm, neck muscles, but we have no clue which or how bad until you wake up. I read the lab orders and the first one is a TSH panel, so he's serious about thyroid. Maybe it's precautionary but it looks to me like he's making sure the next doctor will have a way to tell how many mg of synthroid to prescribe after I wake up missing a tumor AND a major organ. Hell, take out my left lung and collarbone while you're at it, doc, they're in the way too. Save my aorta though, I kinda need that to live. I don't think a single one of these people looked at the CT or MRI.
Color me a little....skeptical. Also fatigued with disgust and the mental energy above and beyond any reason that I have to expend on my own advocacy. On top of all this they won't let anyone else to the appointments or the hospital, so I will have no advocate when I am helpless.
Just marching through the meat grinder. I'm about ready to call the whole thing off and drive 500 miles further north. The only things stopping me are PPO network and the knowledge that it's pretty much like this everywhere at best, and likely much worse.